Arch Iran Med. 2019;22(1):1-6.
PMID: 30821154
Scopus id: 85062434706
  Abstract View: 239
  PDF Download: 310

Original Article

Completeness and Accuracy of Death Registry Data in Golestan, Iran

Susan Hasanpour-Heidari 1, Nastaran Jafari-Delouei 1, Nesa Shokoohifar 1, Seyed Mehdi Sedaghat 2, Abbas Moghaddami 2, Reza Hosseinpour 2, Mohammad Poorabbasi 3, Masoomeh Gholami 3, Shahryar Semnani 1, Mohammad Naeimi-Tabiei 4, Mohammad Reza Honarvar 2, Abdolreza Fazel 5, Arash Etemadi 6,7, Freddie Bray 8, Gholamreza Roshandel 1 *

1 Golestan Research Center of Gastroenterology and Hepatology, Golestan University of Medical Sciences, Gorgan, Iran
2 Deputy of Public Health, Golestan University of Medical Sciences, Gorgan, Iran
3 Death Registry Unit, Deputy of Public Health, Golestan University of Medical Sciences, Gorgan, Iran
4 Cancer Research Center, Golestan University of Medical Sciences, Gorgan, Iran
5 Omid Cancer Research Center, Omid Preventive Medicine and Health Promotion Center, Golestan University of Medical Sciences, Gorgan, Iran
6 Division of Cancer Epidemiology & Genetics, National Cancer Institute, Bethesda, MD, USA
7 Digestive Oncology Research Center, Digestive Disease Research Institute, Tehran University of Medical Sciences, Shariati Hospital, Tehran, Iran
8 Section of Cancer Surveillance, International Agency for Research on Cancer, Lyon, France

Abstract

Background: We aimed to evaluate completeness and accuracy of the Golestan Death Registry (GDR) to identify cancer-related causes of death (CCoD).

Methods: The GDR data (2004-2015) were compared with cancer data collected from clinical/pathological sources (the considered gold standard) by the Golestan Population-Based Cancer Registry (GPCR). Using a linkage method, matched cases, including subjects with CCoD and those with ill-defined cause of death (ICoD) (garbage codes), were identified and entered into the final analysis as study subjects. The completeness (percentage of study subjects with CCoD) and accuracy (number of subjects with correct CoD from the total number of study subjects) of the GDR were calculated.

Results: In total, 3,766 matched cases were enrolled. Overall, the completeness and accuracy of the GDR for identifying CCoD were 92.7% and 53.2%, respectively. There were variations by cancer site and age group, with completeness and accuracy highest for brain cancer (96.3%) and leukaemia (79.8%) while the lowest accuracy was observed for colorectal cancer (29.9%). The completeness and accuracy of GDR was higher in patients aged under 60 years (95.7% and 53.6%, respectively). We also found higher completeness (93.7%) and accuracy (55.8%) in residents of rural areas.

Conclusion: Linkage of death registry data with cancer registry data can be a significant resource for evaluating quality of the death registry data. Our findings suggested that completeness of the GDR for identifying CCoD is reasonable, but accuracy is relatively low. Access to clinical and pathological data from other sources and enhanced training of death certifiers can improve the present situation

Cite this article as: Hasanpour-Heidari S, Jafari-Delouei N, Shokoohifar N, Sedaghat SM, Moghaddami A, Hosseinpour R, et al. Completeness and accuracy of death registry data in Golestan, Iran. Arch Iran Med. 2019;22(1):1–6.
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Submitted: 07 Feb 2018
Accepted: 11 Dec 2018
First published online: 01 Jan 2019
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